EXPRESSION VI (6) English

EXPRESSION VI (6) Carolin meets Hannah

FOR PATIENTS WITH OVARIAN, FALLOPIAN TUBE AND PERITONEAL CANCER DIAGNOSED AT LEAST 5 YEARS AGO
NEW: Instead of the previous requirement of eight years after initial diagnosis, we would now like to invite all long-term survivors of at least five years after initial diagnosis to take part in this survey.

Ovarian, fallopian tube and peritoneal cancer is a very serious tumour disease. Many women often die from it in the first few years. You have been successfully fighting ovarian cancer for more than five years now. Unfortunately, most patients have a much worse course of the disease than you do. Patients who have been diagnosed for more than 5 years are called “long-term survivors”. Since very little research has been done on these patients, the survey sheds light on what makes this rare group of patients tick. So far, there are only assumptions as to what the different courses of the disease might be due to.

What special features of life and lifestyle are there that make women live with ovarian cancer for so many years? For example, non-smoking, a balanced diet and immunological factors are discussed. The survey examines lifestyle, living conditions, psychological factors such as social conditions.

What is the aim of this survey?

We would like to learn from you in this survey “Expression VI – Long-term survival with ovarian cancer” – with the aim of giving you direct feedback and being able to make better recommendations to other patients regarding modifiable factors such as diet and exercise.

What is the process?

You will be given different questionnaires to complete. By completing the questionnaire or answering the questions, you agree to take part in the survey and that you are fully informed about this survey and understand the aims of this survey. We have deliberately limited the number of questions to minimise the burden on you. We do not require your name, address or date of birth to participate in this survey. The survey is anonymous. Filling out the questionnaire will take about 20-30 minutes of your time. Please return the completed questionnaire to the person from whom you received the survey or send it back to the address below.

Are there risks?

No, it is a survey.

Participation Requirements:

Women 18 years of age and older may participate in this study:

  • Patients who were diagnosed with ovarian cancer at least 5 years ago
  • First treatment, recurrence possible

Where can I particapte?

 

Link

or via participating study centres.